I am a mother
An Autism mother
I browse the forays of Facebook
Forgetting the lakes of purples and blues
Decorating my limbs in myriad hues
Pools of rage and emotional instability
Because my Autistic son has the demonic ability
To inflict hurt.
I cringe at the memes. Why am I not more like them?
‘God found some of the strongest women
And made them Autism mums’
Well God must’ve been having a fucking joke
For who wants the slightest fleck of instability
To turn into a tempestuous liability
Who wants the fighting and screaming and cursing
Blue tinged words and searing guilt immersing
Who wants the depression looming
The stress, the headaches booming
God must have misjudged my capabilities
For I’m tearing my fucking hair out with my inability
To be strong for God.
‘Autism doesn’t come with a manual,
It comes with a parent who never gives up’
And I sit here praying for a miraculous amnesty
Nursing my wounds and lamenting my agony
I wish I had that fucking Autism bible
I wish that Shakespeare had written plays about mothers like me, unstable
Spinning round on an infernal neurosis turntable
Mothers who just don’t feel in control, don’t feel able
Who give up every single day
Give up every single fuck
When every second is grey
When the depression comes out to play.
‘If you think my hands are full
You should see my heart’
And my hands juggle some perpetual pandemonium
And I sing these insane songs like a psychotic harmonium
Shit in one heavy hand and giggles in the other
Feeling like an abject, joyless excuse of a mother
And my heart is close to breaking, so close to tears
Patched together by remnants of hope interjected with paranoid fears
If you could really see my heart, you’d see a twisted thorn
All those times I’ve lost my patience and after I’ve sworn
To be a better mum
To be a better mum
For this is an Autism house and I am the mother
And I’m not a fucking meme
I’m a human, another
Soul drowning
In Autism memes.
©2020 Sarah Drury
I think you shouldn’t feel like you have to keep being strong, to be exhausted and angry and aching, to be told that you are brave for suffering and be expected to “not give up” despite it being the only “advice” given, to be told to keep pushing, being congratulated for a lack of a “manual” and having your disorientation disregarded.
You shouldn’t be expected to match the memes you’re referring to. You are allowed to be a mother that’s far from strong or happy or smiling or regulated without being guilted into the former on the basis of having a child with autism.
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I totally agree. We are only human .
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